Sorry I’ve been away for so long. I’ve had a lot going on.. first it was midterms. I nearly thought I was going to lose my mind reading everything that I had to. I can only read for so long before I get super tired and my body is like “okay, you’re done!” Then, I had Spring Break. I went to a camp for individuals with physical disabilities. It is called Camp Craig Allen and is truly an amazing organization. All of the campers except for me were in wheelchairs but that was okay. I had my cane and there was one night where I felt really at ease with it as it helped tremendously. I was at Camp both as a volunteer and as a camper. It was very relaxed and tons of fun! 🙂
After camp, I went home for pretty much 3 straight days of doctor appointments. I had to cancel my O&M which I was really looking forward to because I had to go to another doctor that was super important. I haven’t had O&M in a while so that was pretty disappointing. It was going to help me learn how to use the buses and trains from school to home.
One of my doctor’s that I went to was my Retina Specialist. They ran several visual field tests as well as an ERG and took pictures of my retina. I went in by choice because I felt that my vision was decreasing. The results of the ERG and pictures showed pretty much no decline, however the visual field tests showed that my light sensitivity got worse. I’m still at 30-35 degrees of peripheral vision.. which I was really glad to hear. With these results, however, I was perplexed at the vision loss I was noticing. That is when one of the people at the Retina Foundation told me that the visual field test they do only measures the front 60 degrees because that is what most RP patients have, or less. And they know that I haven’t had 60 degrees for quite some time. The difference, they said, that I was probably noticing was the outer peripheral vision that is getting worse but they didn’t test.
The test they did on me wasn’t the legal version and so if I did the legal version I would be more close to 30 degrees or a little less. I am okay with staying at 30 though because it’s a safe number. I know I’m still visually impaired quite a bit but I’m not legally blind just yet.
As always, I hope to hear your feedback. It’s very important to me and I’d like to get more dialogue going on here.