Vision Degeneration & Guide Dog?

Lots has been going on in my life, including a lot with my vision. I’ve noticed over the past couple weeks that I can’t see as well as I used to. I attributed this to peripheral vision loss because I know that it has happened. Well, I went to my regular Retina Specialist and he said my central vision has gotten a lot worse. So, we are trying to figure out why. It could be CME, it could be just my RP (but central usually goes at end-stage), or it could be something else. Who knows! I also have cataracts but he says they aren’t bad enough to cause this vision change. So I am getting referred to several different places to try and figure this out. That’s frustrating.

What else is frustrating? I feel that what is frustrating me even more is I KNOW, not just think.. I KNOW my peripheral vision is decreasing to but the doctor was so focussed on the my central vision loss that he wouldn’t test my peripheral. And that’s something I really wanted to know and I feel I need to know. I don’t know what ‘legal blindness’ feels or looks like, but from those I have talked to and what I have read, I really feel like I am legally blind. But that doesn’t matter until it’s documented.. grr. I was so close to legal blindness before, I just have to be now. One doc told me at one point I was right at 21 degrees, and 20 is legal blindness but he now isn’t sure.

Last source of frustration for me lately is regarding getting a guide dog. I am very confident in my cane skills thanks to my amazing O&M Instructor, Micha. She actually has her own business now (Mobility & Moore)! She does wonders in minimal time and I’m always very impressed. She helped me learn to navigate the bus system like no other. I am having a little trouble on crossing a few certain streets but overall, I think I am very good with crossing streets, and everything else. But there is still something missing and I have been recommended to get a guide dog by several professionals. Problem is.. most Guide Dog Schools require you to be legally blind, which I am not. So I’m hoping to get that taken care of soon, but who knows.

Frustration is amiss, my friends. :/

Published by

Jessica N and Makiko

Jessica is a proud Texan. She graduated in 2014 with her Master of Science in Rehabilitation Counseling and is now employed. She is visually impaired and has a retinal disease, Retinitis Pigmentosa. Originally Jessica started blogging about everything from being diagnosed with the disease to where she is now, almost 9 years later. Then, Jessica went to Guide Dogs for the Blind and was blessed with Makiko, her new guide dog. Now, her blog "The Way Eye See The World" is about everything related to visual impairments, including guide dogs.

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