There is a Facebook page that I can really relate to.. It’s called “RP Truths.” This site has images, usually white text on black font, about what it is like to have RP, often humorous accounts of what happens to us in everyday life, or positive spins on our frustrations. It is owned by a young lady with RP. One can also order one of these sayings on t-shirts. I can relate to pretty much every one of the sayings; however, there are so many that I picked ones that I especially connect with to share with you all in hopes of spreading awareness this month. If you have RP or a visual impairment, chances are you will be like “YES THAT IS TOTALLY ME!” I know I was surprised the first time I read them about how strongly I connected with them.
This has been something that I have long joked about and always amuses me. Now given, I can still see a little bit and I can follow the sound of your voice but that leaves things open for a lot of embarrassing situations and errors. Please be specific if you are ever guiding someone to you or to another object. We can use our orientation and mobility skills to get to you if you help us out a little but with more specific instructions.
“It’s over there”- If I am looking at you, I will NOT see your hand pointing. I have such a small and blurry tunnel that even if I was looking at your finger, it still wouldn’t be very helpful or accurate. Therefore, being more specific such as “Ten feet to the left of the concession stand at a table,” is much more helpful.
Most people nowadays, especially those who know me well but forget, just start laughing at themselves as soon as they say it because they know how unhelpful they are being even if they are trying to be helpful. I just laugh right along with them and of course remind them to be a little more specific!